Sickle cell disease (SCD) is an inherited, lifelong chronic disorder affecting nearly 100,000 Americans and a growing global health problem that will touch nearly 30 percent more people globally in the next three decades. Though new approaches to managing SCD have led to improvements in diagnosis and supportive care, people living with the disease still have severe complications to overcome. Many are unable to access quality care and are limited by a lack of effective treatment options.
In an effort to identify unmet medical needs for people with SCD, the American Society of Hematology (ASH), along with other groups, issued the State of Sickle Cell Disease: 2016 Report, evaluating the disease in four priority areas — access to care, training and professional education, research and clinical trials, and global health. The report shows that significant improvements are needed across all areas and that, though patients are living longer, the system of care needs to change to ensure a better quality of life. To address these challenges, ASH launched the Sickle Cell Disease Coalition along with more than 20 other organizations who are issuing a call to action that will amplify the voice of the SCD community, promote SCD awareness, and transform SCD care both in the United States and around the globe.
To view the multimedia release go to:
http://www.multivu.com/players/English/7903251-american-society-hematology-sickle-cell-coalition/
Ever since Donna and John met at work three decades ago, they've had the kind of smooth, comfortable relationship that comes when attraction is accompanied by compatible interests as well as strengths and weaknesses that balance each other. They pictured their senior years as an extension of what Donna Dean calls “this nice, easy life. We didn't see the calamity that was coming.”
Brookdale Senior Living, the nation's largest dementia care provider, has created new resources for care partners as part of National Alzheimer's Awareness Month in November. The candid discussion of many of the disease's most difficult challenges includes an up-close look at Donna's and John’s lives since he developed dementia.
To view the multimedia release go to:
http://www.multivu.com/players/English/7722131-brookdale-alzheimers-awareness/
Abila, the leading provider of software and services to associations, nonprofits, and government entities, announced today findings from its 2016 Nonprofit Finance Study: Compliance, People, and Process Complexities. This study explores the challenges and opportunities associated with rules and regulations changes, compliance, managing multiple revenue sources, audits, fraud, and staff turnover in the nonprofit finance department.
“Any time there are rules and regulations changes, there are added costs – both in terms of time and money – for nonprofit organizations,” said Dan Murphy, senior manager of fund accounting strategy for Abila. “Maintaining compliance, mitigating fraud, and preparing for audits add even more layers of complexity for organizations. We found there are a number of areas where nonprofit organizations need to sharpen their focus, better equip their teams with specialized training and technology, and ensure they are mitigating the risk of losing essential finance personnel.”
To view the multimedia release go to:
http://www.multivu.com/players/English/7858252-abila-2016-nonprofit-finance-study/
Abila, the leading provider of software and services to nonprofits, associations, and government entities, announced today findings from its Nonprofit Finance Study: Managing Growth. This study explores the trends and challenges associated with nonprofit growth, including how organizations plan to grow in the next few years, growth’s impact on risk management and compliance, and the difficulties maintaining organizational culture during growth.
“Approximately 80 percent of surveyed nonprofits say they plan to grow in the next 12 to 18 months,” said Dan Murphy, senior manager of fund accounting strategy for Abila, and study co-author. “However, oftentimes, with growth comes increased complexity. For example, managing risk, maintaining compliance, and retaining an organization’s unique culture becomes more challenging as organizations adopt a wide variety of growth strategies. Those nonprofits that understand and plan for growth now and in the near future will be primed for success.”
To view the multimedia release go to:
https://www.multivu.com/players/English/7858254-abila-nonprofit-finance-study/
