Today on Rare Disease Day, My Life, Our Future, a national program founded by leaders in the bleeding disorder community, including Bloodworks Northwest, the American Thrombosis and Hemostasis Network, the National Hemophilia Foundation and Bioverativ Inc., opened the largest research repository of its kind in the world to scientists. The My Life, Our Future Research Repository is a collection of genetic data and blood samples that are linked to phenotypic data from more than 5,000 people in the U.S. with hemophilia, a rare disorder that impairs the ability of one’s blood to clot. The My Life, Our Future Research Repository will allow researchers to advance the scientific understanding of the disorder, including genetic differences that affect bleeding severity and reaction to certain treatments.
To view the multimedia release go to:
https://www.multivu.com/players/English/8046151-national-hemophilia-foundation-my-life-our-future/
The Tory Burch Foundation today announced the launch of a global campaign, #EmbraceAmbition, to encourage women to embrace ambition. The initiative kicks off today to coincide with International Women’s Day. Inspired by Tory’s personal experience as a woman and entrepreneur, the campaign aims to address the double standard that exists around ambition, which is often seen as a great attribute in men and as a negative one in women.
A cornerstone of the campaign is a video PSA celebrating ambition, created with Laird+Partners. The PSA features celebrities and leaders from diverse industries including entertainment (Gwyneth Paltrow, Julianne Moore, Kerry Washington, Chris Pine, Reese Witherspoon), fashion (Anna Wintour), sports (Billie Jean King, Gabby Douglas, Laila Ali), business (Eric Schmidt, Sheryl Sandberg), philanthropy (Melinda Gates) and more.
To view the multimedia release go to:
https://www.multivu.com/players/English/8056451-tory-burch-foundation-embraceambition/
WebMD and Scripps Translational Science Institute (STSI) today announced a new investigative study designed to improve researchers’ and health care professionals’ understanding of what contributes to healthy pregnancies and positive pregnancy outcomes. The Healthy Pregnancy Study will use WebMD’s newly redesigned and enhanced Pregnancy app for iPhone. Incorporation of the Apple ResearchKit software framework will enable survey participants to eConsent, easily and anonymously answer questions, and share connected device data about their pregnancies with researchers for analysis.
“Pregnant women are one of the least studied populations in medical research,” said Dr. Eric Topol, director of STSI and editor-in-chief of Medscape. “The results of our Healthy Pregnancy Study -- on the foundation of an exceptionally popular smartphone app -- will ultimately provide expectant mothers, researchers, and health care professionals with new medical insights to avoid complications during pregnancy.”
To view the multimedia release go to:
https://www.multivu.com/players/English/7579757-webmd-stsi-healthy-pregnancy-study-app/
Living with type 1 diabetes comes with many unique challenges in all stages of life. For parents of children with the condition, financial, medical and emotional worries can be overwhelming. To help support people with diabetes and those who love them, Lilly Diabetes today announced it will donate $94,000 to the American Diabetes Association (Association) Campership program and $100,000 to the Diabetes Scholars Foundation (Foundation).
To view the multimedia release go to:
http://www.multivu.com/players/English/8004851-lilly-diabetes-scholarship-donations/
Bayer, the maker of Coppertone®, is revolutionizing the sunscreen experience this season with new Coppertone® Whipped, a transformative sunscreen unlike anything you’ve ever felt before. Not only is Coppertone introducing the first ever whipped sunscreen, it is rolling out a series of engaging activations throughout the summer to launch it, and partnering with everyone from beauty influencers to the Skin Cancer Foundation.
The Whipped line, available in both CLEARLYSheer® and WaterBABIES® Pure & Simple formulas, transforms the sunscreen application process from an ordinary task to an experience people can look forward to before they head out into the sunshine. While many other sunscreen lotions can feel heavy or sticky, Whipped has a rich and creamy texture, yet it absorbs quickly and feels light on skin. Plus it won't clog pores and leaves skin feeling soft and smooth while helping to protect it from the sun's harmful UV rays.
To view the multimedia release go to:
https://www.multivu.com/players/English/8113551-coppertone-sunscreen-clearlysheer-whipped/
Kiehl’s Since 1851, the 166-year-old skincare company, has used its fleet of iconic motorcycles to raise funds and awareness for AIDS research and awareness for the eighth year in a row. Kiehl’s LifeRide for amfAR, a charitable motorcycle ride from Minneapolis to Nashville, July 31 to Aug. 7, has already raised more than $125,000 for amfAR, The Foundation for AIDS Research and fundraising will continue through August.
Kiehl’s President Chris Salgardo and amfAR CEO Kevin Robert Frost led the 1,200 mile, 8-day journey, accompanied by actors Tyler Posey, Gilles Marini and Ian Bohen, tattoo artist Luke Wessman, and TV hosts Anthony Carrino and Grant Reynolds. Over eight days, the riders participated in nine public events, meeting customers and educating about HIV/AIDS research.
To view the multimedia release go to:
https://www.multivu.com/players/English/8160451-kiehls-liferide-for-amfar-aids-research-liferide8/
Cancer takes more children’s lives than any other disease in the U.S., and nearly 25,000 kids will be diagnosed during the month of September alone. As the largest private funder of childhood cancer research grants, the St. Baldrick’s Foundation is on a mission to take childhood back from cancer by raising critical dollars for lifesaving research and spreading awareness about the harsh realities of childhood cancer.
This September, in recognition of Childhood Cancer Awareness Month, St. Baldrick’s will show how the research it funds is accelerating the development of new therapies and cures for kids with cancer everywhere. The Foundation will also share stories of kids affected by cancer – kids like David and Hazel who were both diagnosed with neuroblastoma, but faced two different outcomes.
To view the multimedia release go to:
https://www.multivu.com/players/English/7916553-st-baldricks-childhood-cancer-awareness-month/
CyberScout’s 5th annual Privacy XChange Forum included an exciting roster of experts and industry leaders to discuss and shape the cybersecurity and privacy agenda for the coming year. CyberScout founder Adam Levin welcomed an all star line up of speakers, including former US Attorney Preet Bharara, counter-terrorism expert Malcolm Nance, and Electronic Frontier Foundation’s Bruce Schneier who put into sharp focus the need to make cybersecurity a front burner issue in the wake of the devastating Equifax breach and Russian hacking and interference in US elections.
To view the multimedia release go to:
https://www.multivu.com/players/English/8186451-cyberscout-privacy-xchange-forum/
Parents want to do the best for their children, especially when they’re not feeling well. That often means giving liquid, over-the-counter (OTC) medications when they have a cold, fever or the flu. But even the best intentions can go wrong when it comes to dosing children’s OTC medicines.
OTC cough and cold medicines are safe and effective when used as directed – this includes always giving your child the precise, recommended dose. When it’s late at night and your child is sick, it may seem easier to reach for whatever is nearby, like a kitchen spoon, instead of taking the time to find the right dosing cup or syringe that came with the medicine. While 63 percent of parents surveyed say they prefer milliliter dosing devices to measure their children’s liquid medicine, 8 out of 10 parents* have given the wrong dose of liquid medicine to their child by accident.
To view the multimedia release go to:
https://www.multivu.com/players/English/8171651-chpa-educational-foundation-know-your-otcs/
Lustgarten Foundation funded researchers at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins have designed a multi-analyte blood test that can detect the presence of pancreatic cancer as part of a panel of eight common cancers (pancreas, ovary, liver, stomach, esophagus, colorectum, lung and breast) as reported in the online edition of Science today. The test utilizes combined assays for genetic alterations and protein biomarkers and has the capacity not only to identify the presence of relatively early cancer, but also to localize the organ of origin of these cancers.
“The potential this has for pancreatic cancer is unprecedented,” says Anne Marie Lennon, M.D., Ph.D., Associate Professor of Medicine, Director, Pancreatic Cyst Center of the Ludwig Center at the Johns Hopkins Kimmel Cancer Center. “We know that in 80-85 percent of pancreatic cancer cases, it’s detected too late, leaving the patient with few options. Developing a blood screening test for pancreatic cancer has been an urgent goal, because catching the disease early will be the way we get to long-term survival.”
To view the multimedia release go to:
https://www.multivu.com/players/English/8213751-lustgarten-foundation-pancreatic-cancer-blood-test/
Let’s Win, an initiative supported by the Lustgarten Foundation, launched the Let’s Win! Pancreatic Cancer Survivors video series Friday, January 19, 2018, at the American Society of Clinical Oncology Gastrointestinal Cancers Symposium. The new online video series, featuring long-term pancreatic cancer survivors of all ages and diverse backgrounds, has been created to show pancreatic cancer patients and their families that people do survive this disease. The survivors have responded exceptionally well to pancreatic cancer therapy that incorporates clinical trials and treatments that go beyond traditional protocols.
When patients are first diagnosed with pancreatic cancer, they often turn to the internet, only to find devastating and frightening statistics about the disease. “Our goal is to provide hope and inspiration to patients and their families,” says Cindy Gavin, founding executive director of Let’s Win. “We are so grateful for the incredible vision of one special patient and the generosity of The Flora Family Foundation for their support of this incredible initiative.”
To view the multimedia release go to:
https://www.multivu.com/players/English/8213752-lets-win-pancreatic-cancer-survivor-video-series/
Having lost his mother to the disease, singer, songwriter Gavin DeGraw knows firsthand how devastating pancreatic cancer is for patients and their families. Gavin is turning his grief into action by helping the Lustgarten Foundation raise awareness by encouraging people to get involved with the Foundation.
“My mother didn’t make it and unfortunately right now that’s a common story. But it doesn’t have to be the story permanently,” DeGraw said. “By funding research, the Lustgarten Foundation is going to change the course of this disease. I encourage everyone to get involved in some way – join a walk or make a donation.”
To view the multimedia release go to:
https://www.multivu.com/players/English/8213753-lustgarten-foundation-pancreatic-cancer-awareness/
