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Sickle cell disease (SCD) is an inherited, lifelong chronic disorder affecting nearly 100,000 Americans and a growing global health problem that will touch nearly 30 percent more people globally in the next three decades. Though new approaches to managing SCD have led to improvements in diagnosis and supportive care, people living with the disease still have severe complications to overcome. Many are unable to access quality care and are limited by a lack of effective treatment options. In an effort to identify unmet medical needs for people with SCD, the American Society of Hematology (ASH), along with other groups, issued the State of Sickle Cell Disease: 2016 Report, evaluating the disease in four priority areas — access to care, training and professional education, research and clinical trials, and global health. The report shows that significant improvements are needed across all areas and that, though patients are living longer, the system of care needs to change to ensure a better quality of life. To address these challenges, ASH launched the Sickle Cell Disease Coalition along with more than 20 other organizations who are issuing a call to action that will amplify the voice of the SCD community, promote SCD awareness, and transform SCD care both in the United States and around the globe. To view the multimedia release go to: http://www.multivu.com/players/English/7903251-american-society-hematology-sickle-cell-coalition/

The Kyoketsu Shogei is a sickle and rope or chain weapon with a ring attached to the end. Master of the Koga Ninjutsu system Sensei Titus jansen from Europe the Netherlands is demonstrating this bladed sickle weapon to the public at his demonstration in his Kage Ryu Dojo ninja academy.

Doctors at Children’s Hospital Boston are just another step closer to securing a cure for sickle cell disease thanks to a little help from some superstar friends. More than $1 million was raised in support of their research efforts on Sunday, January 15 during the “Play Without Pain: Children’s Sickle Cell Benefit,” a partnership with international megastar Celine Dion, Caesars Entertainment, AEG Live and Children’s Hospital Boston. Held at Caesars Palace, the evening included a performance of Celine Dion’s glamorous show directed by Grammy Awards producer Ken Ehrlich, including a touching tribute to sickle cell victims during her rendition of Billy Joel’s “Lullabye.” To view Multimedia News Release, go to http://www.multivu.com/mnr/54153-celine-dion-play-without-pain-children-s-sickle-cell-benefit